"When I don't talk about it, it's not as bad"

That quote from Mollie was in reference to the steroids. She has handled them great this week. There have a been a few tearful and indecisive moments, and she's somewhat tired and subdued, but overall, I'm very impressed.

In this picture, she's working on a craft project and you can see the flower "tattoo" that one of the Child Life volunteers drew on her arm in the clinic waiting room.


We will be offline for a week or so for some much needed time off!

Letters... She's got letters....

Mollie got so many letters at camp- she was so happy that there was something in the mailbox for her every day! She wanted to say thank you to everyone who sent something. Here's the list:

Lala and Finn
Izzy
Momo & TC
Anita
Janet and Charlie
Chemo Angels Susan & Belle
Rhian- for the welcome home card. Perfect timing, as usual!

I hope I didn't forget anyone! I will double check her pile of stuff to make sure.

And here's a shot of her right after she got off the bus from camp-

Clinic Update

Well, here it is, 3:15 PM and we just got back from Mollie's 9:30 AM appointment! Usually, we are home by 2, but today we got held up at the pharmacy because of an insurance issue (ugh). Anyway, the point is that these clinic days are long and boring; it's exhausting trying to keep everyone entertained.

Mollie's ANC remains very low (300), but the good news is that barring any fevers, we get to take our vacation! She got her IV chemo and is starting steroids, but we will still hold the daily oral chemo and we will also hold the weekly antibiotic (Septra) since it can also suppress the bone marrow. Beth (the NP) thinks that will help her counts rebound- let's hope so! All other numbers (hemoglobin, platelets) are fine. Mollie has developed a small rash on her face. Beth thinks that it is atopic dermatitis- the kids on chemo seem to be more prone to that. I tend to disagree, since it is not itchy, and I've heard many other parents say their kids get a similar type of rash when they go off chemo. But, either way, it is really not bothering her very much. If it is inflammatory, though, that may partially explain the low counts.

So, bring on the steroids!

Clinic tomorrow

Mollie has adjusted to life back at home. We had a fun family weekend- the weather was cooler and drier than usual (mid-high 80s) so we went to the Putt Putt (mini golf). Mollie hit a hole-in-one all by herself!

I will take Mollie to clinic tomorrow for her monthly IV chemo treatment and count check. Hopefully her ANC will be back up above 1000 and she can resume oral chemo at home. She will also begin the 5-day steroid pulse. We are looking forward to getting that over with so we can go on vacation! Fingers crossed for good counts and no fevers!

She's back...

We just picked Mollie up after her week at camp. She had a fabulous time! According to her, she swam, went down the waterslide, caught 4 fish, panned for gold, rode a horse, did ceramics, archery, clay, make-overs, went canoeing, hiking (and saw a snake), rockclimbing, had a pajama party, went to a dance with a DJ, dressed in a freaky outfit for carnival.... She also played glow-in-the-dark golf, BINGO, and did gymnastics. Apparently the boys messed up the girls' cabin with string so they got them back by throwing bucketfulls of (fake) bugs in their cabin!!

She is completely worn out and a bit emotional; she's alternating between being very eager to tell us what she did and teary because she feels different than before she left. I'm hoping she will nap/rest this afternoon! She was happy to see us and ecstatic to see Lucy! She couldn't stop hugging her and holding her hand. So sweet.

Update: she's now feeling a lot less "different" and seems to be just fine.

It's nice to have her back!

And she's off!

Mollie is away at camp! She could hardly contain her excitement yesterday when we took her to the camp check-in. I wonder what she's doing right now? I hope the counselors take some pictures, otherwise I'm sure we'll have no idea what they really did!

We had a little scare Sat. night. I was getting Mollie's medicine ready for camp, so I decided to give her her evening medication (just an antibiotic since she's off chemo right now) and get her morning medication ready. As I was doing this, Matt brought Lucy in for a good night kiss. When I turned back to what I was doing, something seemed amiss. I asked Mollie if she took her medicine already and she proudly said, "Yep! Both of them." Oh, no! Both of them- she was only supposed to take one.

I got on the phone with Dr. Vega and it turns out it wasn't such a big deal. We just held her antibiotic doses for Sunday. This mistake was simply caused by a change in routine. Usually, we carry Mollie's meds to her after she is already in bed, because she needs to take the chemo more than two hours after she eats. Since she is off chemo right now and getting ready for camp, we didn't do the routine.

By my calculation, we have given Mollie >1500 pills in the last year! This is the first mistake- kind of amazing, actually.

Guess who's already missing her big sister?

Doing Just Fine

Mollie is doing well so far- we're actually kind of enjoying the chemo vacation. I have to remind myself NOT to give her pills every night!

So, we're going to start packing for camp! Mollie was starting to feel a bit apprehensive, but after seeing Abi and Emily (they are going to camp too) at the market today and hearing about the cool bus and camp carnival from Kelley, she's feeling better.

Low key day- we played a bit in the yard, picked up groceries, and went to the library- all with mucho handwashing.

No fevers! No fevers! No fevers!