4-year old Mollie was diagnosed with pre-B cell acute lymphoblastic leukemia on June 17, 2008. This is her story.
2.14.2009
Love...
to all our friends and family this St. Valentine's day. This might just be Mollie's favorite holiday. She is working on a story called, "The Girl Who Loved Valentines."
She had a great Valentine party at school yesterday. We made a special mailbox to hold all her goodies. Today will be low-key; the weather is bad so we're going to have some play time and take it easy.
Hope everyone has a happy weekend!
2.11.2009
Zofran rocks!
Mollie's weekly, at home drug/chemo regimen goes like this:
6-MP- every single day (for the next 2 years!)
Methotrexate (MTX) - Tuesdays (unless she has spinal chemo)
Septra- Fri, Sat, Sun
Oral/Mouthcare- everyday (we have to get better about doing this!)
Dexamethasone- 5 days every 4 weeks
That is a lot of drugs. The steroids are difficult- no way around that. The only other drug that has caused any side effects is the methotrexate; it makes Mollie feel nauseated.
That's where the Zofran comes in to play. Mollie was upset this morning because she felt like throwing up, but she really was hungry and wanted to go to school. One Zofran and 20 minutes later, she was dressed and ready to go! We got to school a little late, but she jumped right in to the funky scarf-dancing session with her friends!
6-MP- every single day (for the next 2 years!)
Methotrexate (MTX) - Tuesdays (unless she has spinal chemo)
Septra- Fri, Sat, Sun
Oral/Mouthcare- everyday (we have to get better about doing this!)
Dexamethasone- 5 days every 4 weeks
That is a lot of drugs. The steroids are difficult- no way around that. The only other drug that has caused any side effects is the methotrexate; it makes Mollie feel nauseated.
That's where the Zofran comes in to play. Mollie was upset this morning because she felt like throwing up, but she really was hungry and wanted to go to school. One Zofran and 20 minutes later, she was dressed and ready to go! We got to school a little late, but she jumped right in to the funky scarf-dancing session with her friends!
2.09.2009
Playhouse
The weekend was okay; Saturday was the last steroid day for a while. We worked (moving furniture) around the house, but we did make it to Teresia's for a German lesson (and some delicious treats) on Sunday.
Mollie spent some time looking at playhouse ideas... I found one that she really likes (on this blog). What do you think? I love it! We're hoping that Make-a-Wish can build something along these lines. We will keep you updated on the progress.
Mollie had a great day at school today and asked me why she can't stay for afterschool care. She is looking forward to Valentine's day (her favorite holiday, I think). We will work on her special Valentine mail box tomorrow after school.
Mollie spent some time looking at playhouse ideas... I found one that she really likes (on this blog). What do you think? I love it! We're hoping that Make-a-Wish can build something along these lines. We will keep you updated on the progress.
Mollie had a great day at school today and asked me why she can't stay for afterschool care. She is looking forward to Valentine's day (her favorite holiday, I think). We will work on her special Valentine mail box tomorrow after school.
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