We went in to clinic on Monday- counts were good across the board (ANC 4300) and no fever since Sunday morning. After clinic, it was off to art camp!
I'm so proud of Mollie for letting me drop her off at the art program without any tears or clinging. She seems to be enjoying herself. I'm not sure what art projects they are doing, but she's been coming home with lots of colors on her clothes, fingers, and arms, so she must be having fun!
The last few days feel like a whirlwind. Honestly, I'm truly thankful to have my whole family at home on this Easter Sunday, but I also feel let down that we're not having a proper celebration.
To recap the last few days...
Weds. night I took Mollie to the ER for her GI issues and she was discharged with instructions to be observant and keep her hydrated. Matt was up in Charlotte for work and his parents were staying with us. He was supposed to come home Thursday night and we would all leave to spend Easter with his grandparents and uncles in South Carolina on Friday. Matt called on his way home Thursday after work... the car had broken down. He was able to get it running again, but didn't get home until late and we were all feeling stressed. I spent Friday morning packing up all the Easter outfits and supplies and Matt worked on the car a little. Mollie lost one of her front teeth while eating a bagel! In the afternoon, we left for South Carolina, even though Mollie still wasn't feeling 100%.
I can't emphasize enough how difficult it is to deal with situations like this. Mollie badly wanted to go see her G.G. for Easter, but she wasn't feeling well. We didn't know if this was due to her [presumed] GI virus, the steroids, both, or something else entirely. It is such a fine line we walk between taking the right precautions about Mollie's health and actually living and enjoying our lives.
We assumed that Mollie would feel better once she was off the steroids, and Saturday morning, she did seem to perk up a bit. She dyed Easter eggs and went to an Easter egg hunt at the local church. But we could tell she was exhausted and when we got home she took a nap. A few hours later, when she was still sleeping, we checked her temp and it was 102! We quickly packed up, called the oncologists, and headed back to Augusta (~2.5 hr drive) to the ER.
This was terribly difficult for both Mollie and Lucy. Mollie was obviously feeling terrible, but really didn't want to leave. Easter is her favorite holiday and she just loves being around her grandparents and great-grandparents; we don't get to see them often. It was also heartbreaking to see Lucy's response- she clearly didn't understand why we were suddenly leaving and she just laid on the floor and cried. We try not to dwell on it, but I hate that cancer takes away these simple joys from our family.
Matt took Mollie to the ER, while I stayed at home with Liam and Lucy. He ended up fainting while she was being accessed and falling on one of the nurses. They actually brought in a stretcher and oxygen for him- he was fine after a few minutes. It really scared Mollie- she told me this morning that she thought he had died and her heart was beating really fast for an hour. Despite that, she did great with the IV access, X ray, and all the other ER procedure. Her counts were great (ANC was above 4000), so they gave her IV rocephin (antibiotic) and told us to control her fever with Tylenol, keep her well hydrated, and go to clinic on Monday.
So... that brings us to today. Easter Sunday. The kids woke up to Easter baskets, but that is about all we could manage. The pollen is horrible here right now. The earth is literally coated with yellow- cars leave tire tracks in it when they drive down the street- and pollen is just hanging in the air. We don't want to go outside and we're exhausted.
Despite the circumstances, I am content that Mollie is feeling a little better and that we are all home under one roof. Mollie was thrilled with her Easter basket surprises, Lucy was thrilled with the candy, and Liam enjoyed the attention of his sisters. Hoping that Mollie feels even better tomorrow- she is supposed to start spring break art camp (after clinic, of course).