1.03.2009

ROTFL

That's rolling on the floor, laughing at Mollie. Let me explain.

We have been trying to get Mollie to eat more protein lately; we usually tell her that protein will help her grow stronger.

So yesterday, she asked me for some cheese to help her grow and to "kick butt on ass." Yes, you read that correctly and I almost spit tea out of my nostrils! I think she meant kick butt on cancer. Sometimes Matt says she's kicking ass on cancer... hence the confusion.

I am still chuckling about it.

1.01.2009

Happy New Year!

We had our neighbors over for our traditional New Year's Eve cheese fondue last night. It was fun and low key. Mollie and Bella actually stayed up to usher in 2009. Lucy tried to stay awake, but finally gave in around 11 PM (thank goodness!).

I was worried about how Mollie would act around Bella; the previous night she had a big meltdown when Bella was here. Mollie had not been around any children other than Lucy for over a month, and I think she felt overwhelmed. And her social skills need some practice. We are looking forward to getting her back into pre-K and also having her see a child psychologist to work through some of her feelings.

Last night started out a little rough, but Mollie just needed a little encouraging and reassurance. She and Bella ended up playing for 4 hours with very little intervention. We gave them pots and pans to bang outside at midnight but Mollie heard firecrackers and was too scared to go out. A short time later they were snug in their sleeping bags. Unfortunately they were up at 7:30 AM today!

We hope 2009 will be filled with health and joy for all!

12.30.2008

Bump

Well, LTM is delayed because Mollie's ANC is below the cutoff. By machine, her ANC was 11oo, but the manual count revealed that it was 650; the cutoff is 750. Her platelets and RBCs are in the normal range. The 10 days of antibiotics might have suppressed her ANC somewhat, or her bone marrow may just need a little more time to recover from DI.

So, we wait a week. Just a bump in the road, and a chance for Mollie to get a little stronger before starting more chemo. Mollie didn't even cry for her finger stick and she hardly complained about being NPO. In fact, when we got into the exam room she asked me to close the door so she couldn't see the snack area (it would make her too hungry).

We met a little girl named Molly today in the clinic. She was diagnosed with ALL a few weeks ago and was in the hospital at the same time as Mollie (before Christmas). She's just two years old and is going through the really intense chemo & steroids of Induction. Her parents have that "deer in the headlights" look that I'm sure we had too for a month or so after Mollie was diagnosed. I hope they ask us if they need help with anything- networking with other parents of cancer kids was one of the most helpful things for me.

12.29.2008

Feelin' Groovy


These arrived in the mail today and Mollie was sooooo excited. Jay and Diane also sent some buttons. And Mollie got 3 books about bravery and some buttons from my aunt Sunni and a letter from one of her chemo angels. We feel like it's still Christmas!

Mollie is feeling good. Today is her last day of clindamycin (antibiotic). We are all glad because it has been bugging her stomach a little and she hasn't felt like eating much.

The plan is for Mollie to start maintenance tomorrow: a spinal tap (methotrexate), IV vincristine, 5-day steroid pulse, and daily 6-mercaptopurine. It looks like a lot of chemo when I write it out, but it is much less than she has been getting.