Well, the news this morning is good: no fever! Mollie's labs came back and her white cell count is up a little (still no ANC, but I would guess ~200 ish) and her blood and urine cultures have come back negative. It is nice to start the day on a positive note. We've only seen the resident on the floor, not the oncology team. Dr. B is on service and she is very conservative (medically)- I'm interested to see what she has to say.
The hospital is full; normally neutropenic patients would be placed in rooms "behind the glass," in a hallway that has positive pressure rooms with a separate airflow, but none of those rooms are available. The last time we were in the hospital, I think we were the only ones in that hall.
Mollie is sleeping soundly, at least until the "team" comes in to check her out.
Update from Matt : Mollie is awake and in a good mood, Ms. Kym brought a huge bag of toys and I have been defeated twice in Pretty Pretty Princess. Ate some Froot Loops for breakfast and eating lunch now. Dr. B doesnt think it is a UTI after all, at this point the cefepime seems to be addressing whatever the issue is and we will be waiting for her counts to rebound.
Tmp 37.8 C, bp 130/59.
Update from Sarah (3:30 PM): Fever is back up to 101. Lots of crafty supplies were just delivered so Mollie is keeping herself busy doing some cool artwork. We were going to make a haunted house out of a cardboard box, but I couldn't find any black paint. Have to save that project for tomorrow.
8:30 PM Update from Sarah: Mollie's fever came down with Tylenol and the course of treatment hasn't changed- watch and wait. They may give her some claritin and will consider switching antibiotics if the fever spikes again. Mollie is in great spirits- we did a lot of artwork, played some games, and she spent a while playing games online (PBS Kids and Nick Jr.). She shas a good appetite and wanted to go for a walk (but couldn't because of the low blood counts). I hope she has a good night tonight and tomorrow continues to improve.
:( We are bummed for all of you! We'll be crossing our fingers and saying our prayers that she's in better shape soon. Wish we could take Lu today and attempt to entertain her while she misses her sis. Big hugs! Hope you and baby get enough rest!
ReplyDeletea/o 8:30am
ReplyDeleteShe is still sleeping. Started new cefepime drip. Temp 37.7 C (normal), bp 109/53. Nurses Emily and Senethia both commented to me how long it has been since they have seen her, how she has grown, how they saw her on TV, etc. What a celeb!
hope she keeps improving.
ReplyDeleteThis may be a double post...Not sure.
ReplyDeleteBut I want to thank Matt for the update. I am still very concerned about Mollie and the family. I will do whatever I can to help you. Bless you all.
Glad to hear things are looking up a bit. Sorry to hear you're in the hospital. Best wishes for some sleep and a quick recovery!!!
ReplyDeletea/o 12:30pm
ReplyDeleteAwake and in a good mood, Ms. Kym brought a huge bag of toys and I have been defeated twice in Pretty Pretty Princess. Ate some Froot Loops for breakfast and eating lunch now. Dr. B doesnt think it is a UTI after all, at this point the cefepime seems to be addressing whatever the issue is and we will be waiting for her counts to rebound.
Tmp 37.8 C, bp 130/59.
I am happy to hear the news. Thank you for the update, Matt, I sympathize with your ignominious defeats at "Pretty Pretty Princess" but such is life. You are the greatest dad ever. I'm so happy that Mollie is improving.
ReplyDeleteIs Ms. Kym a saint or what?
Love all of you...
I have lots of paint left over from Halloween crafts (orange, black, green). I will put in your mailbox. Also, let me know if you need help with Lu.
ReplyDeleteMichelle
Keeping Mollie & fam in my thoughts, hoping for no more fever and good counts..
ReplyDeleteBummers, I just checked on you guys and you were fine....ugh, got to love this roller coaster ride, it changes so quickly. Praying Mollie kicks this fever and the hospital soon.
ReplyDeletesending good thoughts and prayers to come home very soon!!
ReplyDelete10/22 1:30am
ReplyDeleteFever is back (38.4 C). Mollie has been given Tylenol to knock it back, and they will be switching the antibiotic regimen to Vancomycin as soon as the pharmacy can get it up here. Mollie has had this medicine before, last year in December when she had the long hospital stay. I am optomistic that this will work but concerned that her fever has persisted this long and that the docs are bringing out the heavy hitter. Despite all of this however she is in a good mood and is resting well in between wakeups.
10/22 7:30am
ReplyDeleteThe resident, Dr. S, just came by. Mollie's ANC is up to 126 and her cultures are still negative, both of which are very good pieces of news. The vancomycin drip is going now, and as of 3:15 her fever had subsided (Tylenol helps). So far so good.