Updates from Matt
10/22 1:30am
Fever is back (38.4 C). Mollie has been given Tylenol to knock it back, and they will be switching the antibiotic regimen to Vancomycin as soon as the pharmacy can get it up here. Mollie has had this medicine before, last year in December when she had the long hospital stay. I am optomistic that this will work but concerned that her fever has persisted this long and that the docs are bringing out the heavy hitter. Despite all of this however she is in a good mood and is resting well in between wakeups.
10/22 7:30am
The resident, Dr. S, just came by. Mollie's ANC is up to 126 and her cultures are still negative, both of which are very good pieces of news. The vancomycin drip is going now, and as of 3:15 her fever had subsided (Tylenol helps). So far so good.
Back at home... Lucy isn't feeling too well either. She keeps giving lovely hugs, which would be very sweet except that you come away from them with snot all over you. This is especially unfortunate for me since I really only have one pair of maternity pants that fit comfortably. And while I'm complaining, I bought a bunch of groceries the day Mollie went into the hospital and was planning to make at least 5 or 6 different meals to freeze. Of course, I haven't had the opportunity to cook anything, so all the veggies are starting to go bad. I guess I just needed to vent about the little things.
I sure hope both of my kids feel better soon!
Update from the hospital, 2 PM: Mollie spiked a fever again, 38.5. They just drew blood to check her IgG levels, cultures are still negative. She is resting in bed now, but two therapy dogs just came to visit and that got her to smile! One of them bowed down to her and danced and the other one hopped up into her bed! Her school sent her some lovely pink flowers- that got her smiling too! And she just got a huge Pooh and Piglet balloon from my parents- another big smile!
Update @9:45pm from Matt: Fever is back again, now at 38.2 C and headed the wrong way (was 38.1 an hour ago). Mollie got some tylenol and has fallen asleep. Plan for tonight is the same as last night, lab cultures around 1:30 and vancomycin drip now, with cefepime around midnight.
Mollie and I watched part of an old Don Knotts movie, "The Ghost and Mr. Chicken", on DVD before she went to bed. It used to come on TV every year around Halloween and I was telling Mollie how it was one of my favorite movies when I was her age. She liked when he would do his karate moves but for the most part I think there is a generation gap there!
Wish I could be there to do some cooking for you! Hang in there!
ReplyDeleteBeing in the hospital is total suck. We've been there many times. I'm sorry Mollie is held against her (and your) wishes, but I'm happy to see her pretty pink face and sweet drawings. It's all par for the course, as you know.
ReplyDeleteSending you my strongest vibes that her ANC shoots up, her fever stays gone and you all get out of there ASAP. Loads of love from our family to yours. XXOO.
she looks sooo like sarah in that photo. lovely art, mollie.
ReplyDeletesarah, i still have maternity clothes. want me to dig through and send you some pants?
Glad there are silver linings in these clouds that keep appearing. It's a wonderful support network you have! I'm wondering-- am I out of the loop or is this something unusual-- why do they give temp readings in Celsius?
ReplyDeleteWe love her artwork! Arts and crafts are a huge boredom solver for us while at the hospital. Hang in there ((Hugs))
ReplyDelete9:45pm
ReplyDeleteFever is back again, now at 38.2 C and headed the wrong way (was 38.1 an hour ago). Mollie got some tylenol and has fallen asleep. Plan for tonight is the same as last night, lab cultures around 1:30 and vancomycin drip now, with cefepime around midnight.
Mollie and I watched part of an old Don Knotts movie, "The Ghost and Mr. Chicken", on DVD before she went to bed. It used to come on TV every year around Halloween and I was telling Mollie how it was one of my favorite movies when I was her age. She liked when he would do his karate moves but for the most part I think there is a generation gap there!
The hospital--yuck. Mollie looks so good, though--and I love the pumpkin! Here's hoping for a quick recovery and a speedy exit. Best wishes to all of you from Vermont.
ReplyDeleteAmy (Katie's mom)
10.23 7am
ReplyDeleteDr. S just came by. Mollie's WBC are the same as yesterday (0.5), and her other measurements (HgB, Hct and platelets) are roughly the same as well. No ANC yet (I hate it when they come in here without it). She had tylenol at 9p last night and had slept well since then. Cefepime at midnight, then normal temps at 1A and 4am, vancomycin around 5am. He also mentioned that her IVIG levels were low, but not so low that they would need to transfuse her. I was happy to hear that, Mollie had an infusion to bolster her IVIG level during her December stay and had a reaction to it - one of the scariest moments we have had during her treatment.
So, at this point we are at 10 hours and counting with no fever. Need to get to at least 24 before we go anywhere.