7.03.2010

This I Believe

I heard this essay on The Bob Edwards Show on NPR the other day and I really identified with it.  It reminds me of many of the women in my life, and I can see Mollie growing up to express similar thoughts one day.

Here is the text of the essay (click the link above to listen)

To Preserve A Benevolent Attitude

Verona Wylie Slater - Penn Valley, Pennsylvania
As heard on The Bob Edwards Show, June 25, 2010
My early life was spent in Presbyterian parsonages where I learned a great deal about the “thou shalt nots” of this world. In those days [my father's] parishioners’ problems were often brought to the minister for settlement. He was supposed to be their spiritual advisor, marriage counselor, economic stabilizer, and psychiatrist. Sometimes, father referred to conferences with his flock, saying he had been wrestling with men’s souls. In these mysterious matches I thought of God as a giant referee who spoke through father.

My brothers and I held long conversations about what might be true or false in Christian teachings. One evening during a thunder storm, my eldest brother was inspired to make an unholy experiment. He stood on a sloping rock, which jutted out into the lake near our summer home. Holding his face upward, he defied the Almighty to strike him with a bolt of lightening. The storm was loud and close. The skies opened with a terrifying flash, but the bolt flew across the dark waters a mile away. We felt relieved, foolish, and very insignificant. I have felt unimportant many times since that night and remembered with a smile a bolt of lightning which scorned the Parson’s children.

It took many years to recover from the idea that God was a figure of personal vengeance. Now I think of God as a spirit of goodness, reflected in sane human beings everywhere. In much the same way I look through the pantry shelves to see what is needed for dinner, I have frequently taken inventory of my thoughts searching for a simple philosophy by which I might live. My philosophy embraces three things I would like to be as a woman: wise, gentle, and brave. To be truly wise would take more than one lifetime, perhaps. But achievable wisdom implies the use and enjoyment of my five senses. I can observe. I can read and gather at least a partial understanding of the world. I can learn by listening to others. I can enjoy music. I can taste what is sweet or bitter. I am warned by the smell of smoke and pleased by the fragrance of flowers. With my fingers I might stroke the silken hair on the head of a child. But these same nerve ends keep my fingers from the fire.

Gentleness is the sort of kindness which accumulates with wisdom. It is the big watchword in my book. It is so easy to become an opinionated monster after 40. With age, I want to preserve a benevolent attitude. Children need tenderness to combat their natural savagery and to comfort them in distress. A soothing manner is an important ingredient in any formula dealing with men. It lightens the tensions that shorten men’s lives. A gentle approach toward other women is a vital necessity if I hope to accomplish anything in group projects and if I wish to have friends.

The real value of gentleness is lost if it is not fortified with bravery. When I am afraid, I am paralyzed and ashamed. Women who show a quiet courage in grief and disaster fill me with admiration. I have to evaluate and control fear. In order to reason clearly, I must be brave. Rather than a monument to my own failings, I want my children to be a credit to the society in which they live. All the wisdom I glean, all the gentleness I can maintain, all the courage I can command, I want for them.

Verona Wylie Slater was a housewife and mother to three children in Penn Valley, Penn. She was the daughter of famed New York minister Edmund Melville Wylie, and the sister of writers Philip and Max Wylie.

7.02.2010

"A Mighty Fine Day"

When Mollie got in bed last night, she told us, " I know tomorrow is going to be another mighty fine day!"  She had a great day yesterday.  Matt's parents are visiting and she and Lucy got to play with grandma Janet ALL DAY.  They played playdough, spy (with their new walkie talkies), went for a walk at the nature center, and played some more. 

In the evening, Michelle and I took Mollie and Isabella out for dinner so we could all enjoy some time together.  We went back to our house after dinner for some extended conversation and playing.  We are sure going to miss the J family when we move in a few weeks!

Mollie is back to her normal self now that the steroids have worn off.  It is wonderful to see her playing and taking advantage of all the free time she has.  She has been creating and doing a lot of imaginary play!  We can't wait for Lucy to get her cast off so she can join in a little more.

I have to agree with Mollie.... it was a mighty fine day!

6.27.2010

Offline

My computer is sick... so I'll be offline (hopefully) temporarily :(

6.24.2010

Clinic Update

Mollie's clinic visit went well today-we went in the afternoon and there was nobody else there!  Her ANC is 1100 (perfect) and other counts were great.  We forgot to put the Emla cream on her port to numb it up, but she let me rub a little cream in before they accessed her and it was no problem.  She is such a champ!

Even though everything went smoothly, Mollie was a little cranky and teary.  I still haven't figured out why; my best guess is that she was tired.  She has started her steroid pulse so I'm expecting more tears and frustration (for both of us!) over the next few days.

Oh, I also learned that her last spinal tap wasn't her final spinal tap like we originally thought.  I had assumed that since her "end of chemo" date is Sept. 3 that this chemo cycle, which ends ~Aug. 20, would be her last cycle.  But the protocol calls for her to continue with the next cycle and then just stop chemo mid cycle on the "end date".  It seems kind of arbitrary to me, but it means that Mollie will have a spinal tap in late August and will stop chemo on Sept. 3.  No problem- Mollie seems glad she gets to see her nurses in the OR one more time.

She got to hang out with Ms. Kym today at clinic and is starting to get excited for Camp Rainbow.  If you want to send her a letter or package at camp, make sure you get it in the mail next week so it makes it there in time for camp!

6.23.2010

In Full Swing

Summer has arrived around here- sweltering heat, big bugs, mosquitos, weeds. Not my favorite season here in Augusta and with Lucy in her cast, it is even worse. We are staying indoors for the most part because when we go outside she wants to play in the sandbox. Sand and casts are not a good combo!

Mollie is enjoying her second week at summer day camp and is in pretty good spirits over all. She loves seeing her old buddies from pre-K! Tomorrow she has her monthly IV chemo/steroid pulse- I made her appointment in the afternoon so she can participate in the craft activity at camp in the morning.

Lucy is now walking on her cast pretty well (and climbing the stairs when I'm not looking!). She's got spunk! She knows how to manipulate and she's not letting any broken leg slow her down.

Liam is sweet as can be and growing so quickly! I am in search of new carseats for him and Lucy. They are both about to outgrow their seats; unfortunately, Lucy's seat is also expired, so I can't use it for Liam. Anyone tried the Graco Nautilus seat? Or any other recommendations for a seat for Lucy?

We are chugging along...

6.17.2010

2 Years


Two years ago today, Mollie was diagnosed with pre-B cell acute lymphoblastic leukemia. It was the lowest, scariest day Matt and I had ever experienced. When we got the diagnosis, we were shocked. In tears. Afraid that we were going to lose our baby. We agreed that we would allow ourselves to grieve that one day, but the next day we were going forward, doing our best to adjust to the new normal.

I can hardly remember what life was like before leukemia entered the picture. Lucy was an infant, almost exactly the same age Liam is now. Mollie was a toddler, learning to adjust to being a big sister. Matt and I were learning how to parent two children simultaneously and contemplating future plans/career paths.


June 17, 2008 was kind of a re-birth for our whole family. Everything changed. Walking Mollie down the kicking-ass-on-cancer path became our focus. At times, it has been scary, stressful, frustrating, physically demanding, and emotionally draining. It has taxed all of our resources. But it has also brought us closer together. We've seen how fragile and tenuous life is. And what a blessing!

In the 2 years since her re-birthday, Mollie has blossomed into such a wonderful big kid ! She is so caring and concerned for others. She's bubbling with energy and thrilled that she can now express herself in writing and can read EVERYTHING around her. Like me, she doesn't remember life before leukemia.

I don't often use the term 'survivor' when referring to Mollie, but for this day I will. I don't generally think about our lives being that different from 'regular' families without pediatric cancer because if I go there, I start feeling sorry for myself. But today I will think about our struggles and our strengths. It has been 2 years of some really tough stuff, but I still feel lucky. And hopeful for the future.

6.16.2010

Quick Update

Lucy got her cast on today... and she will be able to walk on it (hence the cute little shoe). And we go back in 3 weeks for an X-ray to see how it is healing.


Oh, and Mollie has developed a cough so I am praying that doesn't turn into anything!!