Clinic Update

Mollie showing her port, already accessed and taped up

Mollie's LP went smoothly yesterday! It was a long day- we didn't leave the hospital until 3 PM and didn't get home until 5 because we went out for pizza. Mollie was so great- she hardly complained at all (remember, she was fasting all that time) and was sweet as could be when she woke up from the procedure. According to her treatment protocol, this was her last LP (for IT methotrexate). She also got IV vincristine. This starts her last 84-day 'round' of chemo (I feel so ambivalent about this).

Her counts remained high (ANC = 2400); because they have been above 2000 for 3 months in a row, she will now take an increased chemo dose (125%) and go back in two weeks to have counts checked. I will feel much more at ease if we see the counts dipping in two weeks. The steroid dose went up too and we can really tell. It seems like just a few minutes after her first dose her brain was going a mile a minute! She is napping right now, but when she's awake we have to keep her busy or she gets really grumpy.

We saw Zackary in clinic- he had Mollie running around and playing Candyland, a great distraction for her! It was great to see Carrie- now that Zackary is done with treatment, we don't see them as often. Sadly, we also saw another family in clinic that had just found out their son had relapsed with neuroblastoma after 18 months with no evidence of disease. We really feel for them and pray for Gabe's full recovery.


  1. a message from Iza and Mimi :)

    Hi Mollie! we like your green headband! from Iza and Mimi and I have a port too!

  2. Yipee, the end is near!

    Seeing friends in the clinic always makes the day go quicker. Gage was increased this past visit and it really took a toll on him.

    Bummed about Gabe, my heart really hurts for them.

    Have a super weekend!

  3. What a trooper Mollie is. What troopers you two are. And oh my, Mollie has changed several times over since I saw her last.

  4. Ugh-- relapse :( Thinking of you all and sending hugs for what seems like the last stretch, at least for some things. I love her snaggle tooth smiles!

  5. On the home straight - woo hoo! And trooper is right on there, much more of a trooper than I would be I think! Good luck in the coming months!


Comments are always welcome!