Mollie got her monthly IV vincristine today and has started her steroid pulse. She did fine with the port access and we were actually done by noon (a minor miracle). But... we still had to get prescriptions filled afterwards. These clinic days are LONG.
Mollie's ANC (neutrophil count) is much lower than it was a few days ago (1100), but she is not neutropenic. Neutrophils are the infection-fighting white blood cells. This lower count means we need to be extra careful about infections because if she does get one, she will likely become neutropenic and may end up in the hospital. She's still very congested and doesn't have a lot of energy.
We will probably hold her out of school for the rest of the week; we need to get her feeling better!
how are you and matt doing? how does lucy do with the long days?
ReplyDeletehugs.
Sending good thoughts your way!! We just had a huge rainstorm this week- first of the season and it was a doozy! Feel better, Mollie!!
ReplyDeleteNicola, we're hanging in there. Tired. Mollie is having a hard time sleeping because of a cough so I've been getting up to comfort her several times a night. Matt's been working as normal, but coming to help out at lunch (bringing us bagels, picking up Lucy, etc).
ReplyDeleteAll the playrooms in the hospital/clinic are closed due to H1N1 concerns, so the kids are bored in clinic. Mollie is pretty good and will color/watch a movie, but Lucy is bouncing off the walls! At least it's entertaining!
This is nothing compared to actually being in the hospital though.
Uck! Sorry it's such a challenge lately. Glad Lucy's spirits are up, though-- she seems resilient (personality or situation, TBD?!). We'll be thinking of you and sending prayers your way that you get a lull soon :)
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