Where Did April Go?

Spring is in full swing around here, and summer is just around the corner!  The next month is going to be the [relative] calm before the storm.  Starting in June we have the last day of school, Mollie and Lucy's ballet performance,  ballet camp,  Camp Rainbow, and then we are moving at the end of July!  And I have so much to accomplish to make that all happen smoothly!  I'll say it again... we are really excited to be moving back to California!

Mollie had a clinic visit a few weeks ago and everything went just fine.  Her blood counts were perfect and Dr. J said that she looks great and is growing well.   We had her regular pediatric visit as well, and Dr. L confirmed that Mollie appears to be very healthy.  One thing that both her doctors have noted are shotty nodes in her neck.  These are small, hard lymph nodes.  Dr. J said that they can mean that she is fighting an infection, or since they seem to be persistent, it might just be the way her nodes are after fighting multiple infections during chemo. 

Lucy is almost the exact same age that Mollie was at diagnosis, a fact that I do think about often, especially with the plethora of bruises that Lucy always has on her legs.  She is a rough-and-tumble girl though, and the bruising just comes with the territory.

Liam is a talkative two year old these days.  He tries to keep up with Lucy and Mollie, but is content doing his own thing when they are too busy for him. He's a smart little guy who wants to do everything by himself ("No!  Liam do it!").

We signed the kids up for the Blanket Fairy's Christmas in July again.  It was so great last year- we are all very touched by the generosity and kindness of the volunteers.  Next year, we plan to be fairies for another family. 

There are quite a few spots left for this summer, so if you have a child going through treatment or in remission, sign them up at the link below:

http://theblanketfairy.weebly.com/christmas-of-hope.html

2 x 4 = 8!

Today we celebrate Mollie's 8th birthday!  And with Liam being two and Lucy being four, it makes a lovely equation. 

Mollie is doing just great!  She was happy to find out that today is also Super Tuesday! She is doing very well in school, building up strength and having fun in dance class, and being a sweet sister and daughter.  Boy are we glad she was born!

In other news, we have made the decision to move back to California this summer! More details to come...

Merry Christmas (& Clinic Update)

Wow!  Has it really been over 3 months since I updated the blog?  I started a full-time job in a nutrition research lab in August and time just flies these days!

Mollie had her quarterly clinic appointment yesterday, which consists of a physical exam and CBC with differential.  Dr. J says she is looking great and she has the blood counts to prove it!  Her ANC is 4000- we got our Christmas wish! We have weathered a few fevers and colds without having to go to the hospital (although the anxiety made me want to check in to a mental hospital!).  She is taking dance classes now (ballet, tap, and jazz) and is just enjoying being a kid.  She is doing great in school, but her neuropsych evaluation revealed some areas of relative weakness.  We are looking forward to meeting with a team at her school in January to develop and IEP or 504 plan to address these areas.

Lucy and Liam are doing just fine, too.  We found a wonderful child care center and they have adjusted well.  It is really warm and family friendly.  Mollie goes there for after-school care and loves being there with her siblings!

I wanted to send a special THANK YOU to everyone who donated to CURE Childhood Cancer for Matt's NYC Marathon fundraiser.  We raised $2150 for pediatric cancer research and support and Matt had a personal best!

Mollie doesn't have to go back to clinic for 3 months(!) but I promise I will update the blog before then.  I think I need to do a big photo post.

Merry Christmas and Happy New Year!

Clinic Update

Mollie had clinic today (I just realized I forgot to post about August clinic because Matt took her to the appointment.  Oops!).

Great news-  her ANC is 2800- perfect!  All of her other blood counts (WBC 6.3; Hgb- 12.7; Plt 219), electrolytes, and liver enzymes are in the normal range too.

But the visit was a little difficult because they sprung a flu shot on her and needed to get blood via normal venipuncture (in the arm) and not Mollie's preferred finger stick.  Mollie cried lots of tears and begged me to let her wait on the flu shot.  While it was hard for me to see her cry, it reminded me that it has been over a year since she's had any invasive procedures (besides the regular finger or arm stick) and she's forgotten what it is like to deal with surprises at the oncology clinic.

Child life was great at helping her deal with it; they gave her the option of using freezy spray (a numbing agent that they spray on the skin).  Mollie had never used it before, so they brought in a teddy bear and demonstrated on him and then let her take the bear home!  She forgot all about the pain after that.

The other good news from Dr. J (oncologist) is that Mollie now only has to be seen in clinic every 3 months!  Sept. 3 was the 1 year anniversary of her end of treatment (!) and that means they can space out the follow-up visits further.  Mollie is happy about it; me, not so much.  I like the peace of mind that the monthly CBC offers, even if it is a false sense of security.

That's it for now!  Have a great week!

It's That Time of Year Again

September is Childhood Cancer Awareness month.  
 You can tell from all the gold ribbons plastered everywhere, the corporate sponsorships, and TV specials, right?  Right.

Tragically, pediatric cancer doesn't get the attention and research funding it deserves.   And kids need adults to advocate for them and give them a voice.  Four-year-olds can't get all their buddies to join them in letter-writing campaigns and fundraising events.  It doesn't help that September is such a busy month.  Kids are just going back to school, everyone is adjusting to their new routines, and there's not much time to add anything else to the mix.  But, it is what it is.   We've got a month, let's make it worth something.

Please don't let this month go by without doing something!  What can you do?

• Make a donation to your favorite pediatric cancer research organization or charity
• Make a meal or send a gift box to a child (or family) fighting pediatric cancer or suffering the aftermath
• Donate blood
• Donate (new) toys or books to your local children's hospital
• Write to your Congressman and tell them you want to see more federally-sponsored pediatric cancer research

G2D1

The first day of school is already here?  Here's to a great second grade year!  Good luck Mollie!

P.S.  Mama promises to write a longer update soon.  So much to write, so little time!

Summer of Confidence

This summer, Mollie is making up for lost time!  She is busy mastering things that she couldn't or wouldn't attempt while on chemo: riding her bike without training wheels and learning to swim. 
She was treading water in the "deep end" at her lesson this morning! 

She is also reading chapter books, some by herself and some together with me.  So far she has finished Harry Potter and the Sorcerer's Stone, The Secret Garden, A Cricket in Times Square, and we are about halfway through with The Wind in the Willows.  

My parents were visiting last week and we all had a great time, despite the heat.  Mollie expressed interest in doing some needlework (cross stitch), so my mom picked up a kit at a craft store and taught Mollie how to get started.  Currently, she is working on making a cupcake design for Lucy.  It's a great quiet time activity that incorporates a lot of skills- manual dexterity, pattern/chart reading, counting stitches,  and following directions.
This weekend Mollie heads off to Camp Rainbow.  It is hard to believe this is her third year! Leave a comment or send an e mail if you would like her address to send her a card.