We didn't have the celebration we had planned for Mollie's last day of treatment, but the day was momentous and memorable none the less! On Saturday morning, we presented Lucy and Mollie with trophies for being so courageous over the past 2 and a half years (810 days). Mollie has been wanting a trophy for a while now and she couldn't believe she got a real trophy!
I still don't know what my feelings are about Mollie going off treatment. I know that I am scared of recurrence. And side effects from the chemo, but mostly of recurrence. I think about all the other families that have been on this journey. For some, the treatment ended and they never looked back. Other children have had countless health problems OT. The most painful stories are of those children that relapsed and didn't make it. They died from this damn cancer after fighting it for 2+ years! Scared is about all I can feel right now.
If you haven't been there, you just can't imagine what it feels like to sit waiting to find out if your child has relapsed. Matt and I hardly talked to each other- I think we were each in our own little bubbles of worry, just trying to keep it together. My mind was jumping from wondering how other parents felt when they were in our seats to 'how am I going to summon the strength to face this beast again, with a worse prognosis.' But... we got great news and I know how fortunate we are. I am trying to focus on that. I know Mollie feels some trepidation about going off treatment. I don't think she fully realizes that the cancer can come back, but she just feels strange not taking medicine every night. I can only hope that soon the nightly meds will be a fuzzy memory as we focus on living well, not worrying.
On that train of thought, we spent the rest of the weekend enjoying being out of the hospital. My parents stayed until yesterday, so we did some shopping, walked around the UNCC botanical garden, dined at various local establishments, and took a little walk around uptown. Today, we went letterboxing (if you don't know what that is, look it up and try it in your area). We found a letterbox at a park that is just around the corner from our house. Mollie and Lucy thought we were on a treasure hunt and had a grand time! Liam got his second tooth so he was just enjoying the ride. Mollie walked a lot and is feeling good! Her gums are still a little swollen and the rash is just about faded away. We will follow up with the oncs here on Thursday.
"Bubbles of worry"! Now that is a concept I understand. The main reason that Mollie is with us is that she had responsible, caring, "take care of business" parents who did whatever it took to get her healthy. This is a momentous occasion. The trophy is way cool and I saw how happy Mollie was when she got it.
ReplyDeleteShe is a sweetie.
Enjoy what you have and fight to keep it.
Mollie seemed so happy when I last saw her yesterday. I treasure that time and I hope that you will too.
Mollie, just go live life.
6 years old and been through so much but the future looks bright. Have fun whenever you can.
Sarah,
ReplyDeleteI have been offline. I am so sorry to catch up by reading all of this, but I started at the top here, so I am already relieved and hopeful for all of you. Think of you all often, always healthy vibes heading Mollie's way.
Nicola
Fabulous! Mollie looks so happy in the picture with the trophy. Hope she gets to take it to school sometime for show and tell. I'll get in touch and maybe we can get together. Mollie - I want to see that Trophy!
ReplyDeleteMrs. Swenson
You are right - I have no idea what it must feel like to be in your shoes. I hope that you and your family can enjoy life to the fullest now! I am so happy for your positive news. The trophies were a fantastic idea!
ReplyDeleteHugs,
Tricia
That photo of Mollie kissing her trophy is so precious!! It brought tears to my eyes.
ReplyDeleteMollie, you are an amazing girl and I love you so much - congratulations!
Auntie K
Dad, don't forget she had good fortune too. Doing whatever it takes doesn't always work- that's why one in five kids diagnosed with cancer will die within 5 years of diagnosis.
ReplyDeleteThat is a horribly sad fact. But not doing what it takes NEVER works. So all I am saying is that you did the right things to give Mollie a chance.
ReplyDeleteNo guarantees in life. Hope, not despair is so important.
Keep on keepin' on!
Love you Mollie!
I find the photo of Mol with the trophy really moving. Hope to see you all soon for some big hugs :)
ReplyDeleteI love the photo (and her nails look awesome)!! We are so happy for you all. My thoughts and prayers are with your family all the time.
ReplyDeleteMichelle