Check out this short and pointed article in Working Mother.
Every single sentence in this article is something I have thought or experienced.
I live with it every day, but I don't often dwell on the reality that my child has cancer. My child has cancer! It intrudes on our daily lives in the form of anxiety & worry, chemo side effects, the need to always have back-up plans and carry the Huber needle, Emla cream, and thermometer. But mostly, it takes time away from doing normal things. How many hours have we spent in clinic waiting rooms, the ER, or the hem/onc unit?
I look forward to September 3 (Mollie's chemo end date) with trepidation, survivor's guilt, and a feeling that by celebrating, we are tempting fate. I plan to use these feelings to help do something about childhood cancer. I haven't decided what, but I'm mulling it over. You see, one of the most tragic aspects of pediatric cancer, is that the people who most want to advocate for these little patients, are also the most overburdened and exhausted.