Über busy. Among other things, we're still trying to organize/unpack, learn about our new home/neighborhood, get Mollie ready for school. To top it off, Mollie has her last spinal tap (for real) on Friday.
Matt was out of town for a long weekend camping with his friends, so I held down the fort and tried to keep the kids busy with some summer activities here in North Carolina. We went gold panning at Reed Gold mine (site of the first documented discovery of gold in the U.S. for all you Californians) and Mollie found 2 tiny little gold flakes. I was more excited than she was- she thought she would find big nuggets! And Lucy was just excited to get her hands in the muddy water.
We also had a lovely lunch with Mollie's kindergarten teacher at Ikea (the kids love that place) and visited Matt's grandparents in South Carolina. It has been good to spend a little time with people we know since moving to a new place can be very isolating.
Mollie is doing well. She has had some skin issues (reminiscent of last summer)- a few rashes, blisters, and sunburn/abrasions on the backs of her hands. We have been very diligent about sunscreen and she seems to have a reaction to it no matter which brand we use. The 6-MP and Bactrim that she takes daily can both cause sun-sensitivity so those are probably contributing. In any case, you can tell she and Lucy have been outdoors enjoying the summer. They have the scrapes and band-aids to prove it!
Please keep our friend Carson in your thoughts and prayers. He has been in the ICU for 9 days suffering from rare toxic side effects from chemotherapy- liver toxicity and fluid in his lungs. His mom is doing the best she can and my heart really goes out to her. It is so, so hard to see your child suffer and not be able to do anything about it. You just want so badly to take control, to know how long you're going to be there, to know the "plan", and to make it all better. Mollie has not been in the PICU, but I can imagine it is many times harder than being in the hem/onc unit. I do know that nothing will really help except for Carson getting better.