Last night we had a little show-down over a peanut butter and jelly sandwich, but that's old news. Today went off without a hitch!Mollie's ANC was just above the cut-off so she got her IV chemo and intrathecal (spinal tap) chemo as well. She also starts a new oral drug tonight, 6-MP. We are going to have to monitor her reaction carefully as it causes quite a bit of toxicity in some patients.
A coloring book from Syl, Keith, and William and turtle tatoos from Kels and family made the waiting easier. And the promise of another present afterward helped too (she's been eyeing the one with the little pink pegasus ring from the Johnsons). She took a nap in the clinic (and was even asleep while they were giving her chemo through her port) and then another nap in the OR recovery bed.
The best bit of news from today is that Mollie's cytogenetic report said that she has "no clonal chromosome abnormality." That means her leukemia is standard risk; she doesn't have any chromosomal rearrangements (like the Philadelphia chromosome) that would put her into a higher risk category. I still need to look at the report more closely and figure out what everything means.
Another piece of good news this week is that my friend bsa (nea's mom) found out that her abdominal mass was a GIST and was successfully removed. And she may not even need chemo for it!!
Thanks for all the good thoughts and prayers! They are working!
gooooo, mollie. my mom (who will be so touched to be mentioned here) told me that something someone told her has been so helpful with fighting her fears: "chemo is your friend."
ReplyDeleteHugs and kisses to all of you for this is definitely a joint venture. I see your quote from Lance Armstrong...and agree "Fight like hell!
ReplyDeleteNEA's dad read it last month and was very moved and inspired by Armstrong's book. It is on my list still.
Now I am looking at gleevec will be my friend. This is a chemo type tablet taken daily with the hope of preventing a recurrence of the GISTs. Do any of you readers know anything about this drug? Mollie's mom can give you my e-mail address.
Hello parents of Mollie and Miss. Mollie. This is Colby Graces mom Jennifer (from Ms. Melanies class). We have been praying for Mollie and miss her at school. Please tell Mollie Colby Grace has been asking about her. God Bless! Jennifer
ReplyDeleteHello parents of Mollie and Miss. Mollie. This is Colby Graces mom Jennifer (from Ms. Melanies class). We have been praying for Mollie and miss her at school. Please tell Mollie Colby Grace has been asking about her. God Bless! Jennifer
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