Hospital: Day #10
Things are looking better this AM. Mollie did spike a fever last night (39.2) but a) was not as high as previous nights and b) came down pretty quickly to normal (37). Her ANC is up around 900 and her breathing is greatly improved.
We haven't heard the results of the CT yet and won't here about the nasal swabs for some time (they sent them to an outside lab).
Matt and I both are annoyed that the hospital seems to undervalue nutrition and hygiene as part of "medical care." The food in the hospital is crap, and Mollie has been eating less and less each day. We have asked several times for proteins shake and multi-vitamins and finally go the OK to give them to her yesterday. And nobody seems concerned that she hasn't bathed or brushed her teeth (We finally got her to do both!) So, we're pushing that pretty hard right now.
Mollie had "reverse" trick or treating this morning; she dressed up as a bat and got 3 bags of loot! All the staff were dressed up and they came by her room and made her say "trick or treat" before heaping treats in her bucket. She got her neupogen shot delivered by a nursing student- that was annoying. It took forever and she was screaming. I believe in students and understand this is a teaching hospital, but they shouldn't practice on a child who has been here for 10 days!
Mollie is in a good mood, energetic, afebrile, and generally happy. We would like to think she's turned a corner... but we know better than to make that declaration yet!
Mollie has been having a great day (other than not eating much). Still afebrile and we're working on clearing those lungs. The CT showed that she does not have necrotizing pneumonia (which is very dangerous), just regular pneumonia. That is probably what is causing the fevers to spike so with the respiratory therapy we're hoping to clear out the gunk and fluid and get the fevers to stop. Dr. Vega says we'll definitely be here over the weekend and once she remains afebrile, ANC shoots up (BTW, her WBC count was 900 today but ANC was only 342), and her lungs sound better, she can go home. They will continue with the neupogen shots until her ANC is around 5000. The shots sting, even with the lidocaine cream, but she is usually completely recovered a minute later. The anticipation is the worst part and she always knows when the shots are coming because they come in and put the Emla cream on her leg 15 minutes before giving the shot.
11 PM Update: I just got home from the hospital and Mollie is goofy and energetic and still fever-free! She's been eating plenty of candy and was so happy with all the cool Halloween stuff that arrived in the mail today. Her hospital room looks like Halloween-land! If I think of it, I'll do a video tour of our home away from home tomorrow.
Posted by PleaseRecycle