Mollie had her first OT clinic visit today- woo hoo! She was quite nervous about the unfamiliar clinic, but it all went well. Basically, she will be seen once a month for the next year for counts and a physical. We are to watch for any signs of recurrence like bruising, palor, malaise, and swollen lymph nodes. She can't have any immunizations for the first 6 months OT and no live attenuated vaccines (like MMR) for the first 12 months OT. As long as she still has her port in, we need to call clinic for a fever (because she could have an infection of that central line and could become septic VERY quickly). She will also stay on septra for about 6 months.
The whole appointment took an hour at most. It was surreal to sit there and have a matter of fact conversation about Mollie being off treatment. Dr. J was good about answering questions and told me that eventually Mollie will be seen in their long term follow-up clinic that deals with late effects (neuropsych and physical) of chemo.
Mollie's counts were good:
The ANC is a bit low, probably due to the lingering effects of this virus. So far all the tests they ran in the hospital have come back negative (so it was not an adenovirus or parvovirus and not likely to be fungal or bacterial); still waiting for the skin biopsy results. We'll probably never know what caused it....