10/29 9 am
Not much change from yesterday around this time. Mollie's fever was up and down again all night last night, and hit 40.1 C at 6:45 this morning. I wish there was better news on that front.
Her counts are continuing slowly to rebound. WBC is 0.8 today, HgB is 9.7 and platelets are 76. The neupogen and RBC transfusion yesterday obviously helped.
No news on the ANC yet. Mollie has been doing really well with her spirometer. This instrument helps make sure she is inflating her lungs well. It's kind of like a big straw that you inhale through and she was very scared of it at first. She just had a chest X-ray and there is a "fluffy" area in her lower left lung, so they are also going to start CPT and some albuterol breathing treatments to help clear that area. She's going to hate it.
Ms. Pam came in and did some school work with her, then we played a goofy game of I Spy that got her laughing (and coughing- helping to clear those lungs), and now she's watching a movie. She just got her neupogen shot- boy did that piss her off. The way she was yelling you would never know she was sick.
At this point, we are still just treating the symptoms, trying to prevent a secondary infection, and hoping the flu will quickly run its course. It is frustrating and concerning. I wish there were signs of definite improvement.
7:45 PM We had a consult with Dr. Murray from Infectious Diseases today. He ordered a CT and nasal swab for Mollie. We don't have the results yet and probably won't until tomorrow. He also wanted to change one of Mollie's antibiotics (to minimize resistance) and start her on an antifungal. He agrees that this doesn't look like a fungal co-infection, so this is empiric treatment. Mollie endured a bunch more tests and treatments today: Chest X-ray, Chest CT, 2 (soon to be 3) breathing treatments, 2 nasal swabs, and a neupogen shot. Not to mention all the antibiotics and being on an IV continuously. Despite that, she is in good spirits right now- singing songs and drawing pictures.
Michelle- yes! she can have candy. They are doing "reverse" trick-or-treating tomorrow- all the staff will come by Mollie's room and bring the candy to her! I hope she's in the mood for it.